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Remember we had no foresight into this condition then, and babies with this condition were often kept away from family members and they were often seen as a child to be ashamed of.In fact, my husband’s family regarded her as a shameful baby, my ex-father-in-law came to my mother’s house and walked past her pram and said “nothing to do with our side of the family”.
The road ahead was very hard and I was continually told that this sort of child did not happen to young women of my age, it only happened to older mothers usually in their change, you can imagine I was in shock and did not have a clue what the future held, all I could see in my mind was a child being taken along with a stupid hair cut, long socks and frumpy clothes. The next week I was in a daze and finally went to the hospital to be given the results.
I kept thinking that they had had it all wrong and my baby would be ok.
As she got older, she became a nightmare and would escape from any window or door and she would be off.
She also loved to visit the bathroom of any place we visited and proceed to lock herself in, she could move quicker than the wind, and gave me many a grey hair.
His words will live with me forever; “I gather you already know what I have to tell you”.
That was it, he then said that blood tests had to be done and it would take a week or so to get the results.
The day arrived, and I went to pick up this young man called Tommy, he lived in a shared house with two other people with special needs and had carers who helped them.
Tommy had been in care since he was 13 as both his parents had died, he was an only child and did not know any other family members.
These were the longest loneliest hours I had ever known.
All the other mums avoided me like I had an infectious disease, I had asked the sister and the doctor if my baby could be a ‘mongol’ baby as they were called then, if I had hit him I do not believe I could have had a more shocked reaction.